Director, Patient Advocacy & Engagement TTR

Alnylam - Cambridge, MA4.6

Full-timeEstimated: $120,000 - $170,000 a year
Director, Patient Advocacy and Engagement, TTR


Alnylam was founded in 2002 on a revolutionary vision and bold mission which remain firmly in place today. We are leading the translation of RNA interference (RNAi) into a new class of innovative medicines with the potential to transform the lives of people with rare genetic, cardio-metabolic, hepatic infectious, and central nervous system diseases with unmet need. Our first medicine, the first-ever RNAi therapeutic, has recently been approved by the FDA in the US for the treatment of the polyneuropathy of hereditary transthyretin-mediated amyloidosis in adults and by the European Medicines Agency in the EU for the treatment of hATTR amyloidosis in adults with stage 1 or stage 2 polyneuropathy. In addition, Alnylam has four investigational medicines in late-stage development. Alnylam is proud to have been recognized as one of The Boston Globe’s Top Places to Work in 2015, 2016, and 2017.

Reporting to the Head of Patient Advocacy and Engagement, the Director, Patient Advocacy and Engagement TTR will be accountable for the development and implementation of a global advocacy and engagement strategy for the TTR amyloidosis program, in alignment with global advocacy and engagement strategy and program strategy. This individual will serve as the primary point of contact for the patient advocacy community in the TTR therapeutic area. S/he will partner with local medical team to maintain a consistent and coherent voice with the patient advocacy community as part of our overarching external community strategy.

Summary of Key Responsibilities
In partnership with cross-functional global, regional and local teams, develop innovative short- and long-term engagement strategy with patient advocacy groups and the communities they serve
Work closely with cross-functional stakeholders and local medical teams to develop and execute regional and local patient advocacy engagement plans for the TTR program aligned with the global engagement strategy
Identify opportunities for mutual collaboration such as increasing disease awareness and education, enabling earlier diagnosis, and supporting access to therapies
Serve as the primary point of contact to build and maintain collaborative, long-term partnerships with key patient advocacy groups globally
Partner with local/regional medical affairs and market access team to support activities that improve patient access
Partner with local/regional medical affairs and patient services team to support patient education
Gain deeper understanding of the patient communities and ensure patients are at the center of what we do and that patient perspectives are reflected in our thinking
Lead and develop patient advocacy and related advisory boards
Partner with Medical Services team to develop both internal and external materials supporting the patient advocacy and engagement plan
Manage budget planning, spend monitoring, and forecast related to patient advocacy and engagement activities

The Director, Patient Advocacy and Engagement TTR will be part of a very active team within a dynamic, fast-paced, high-profile biotechnology company. The successful candidate will possess the following capabilities and characteristics.
BS/BA degree in life sciences required; master’s degree desired
8+ years in the pharmaceutical or biotech industry
Significant experience in outreach and patient advocacy, and knowledge of public policy, government affairs, and local regulations. Experience in rare diseases is preferred
Deep understanding of the needs of people living with or at risk for developing rare diseases as well as pressing public health issues, including patients and caregivers
Understanding of key trends affecting patient engagement and new forms of patient interactions (e.g. social media and online communities)
High degree of professionalism, maturity, and confidentiality
Cultural sensitivity and maturity to interact with people of diverse background
Strong communication and interpersonal skills.
Ability to execute and deliver quality programs within timelines
Demonstrated reputation as a well-respected, dynamic team player
Proven planning and organizational skills with experience managing multiple priorities; ability to prioritize in a shifting environment with a sense of urgency
Ability to travel up to 30% of the time as needed

Clear alignment with Alnylam Core Values
Commitment to People
Innovation and Discovery
Sense of Urgency
Open Culture
Passion for Excellence
Alnylam Pharmaceuticals is an EEO employer committed to an exciting, diverse, and enriching work environment.