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Community Development Project Manager (Midwest:Illinois, Michigan, Wisconsin)

Huntington's Disease Society of America (HDSA)
Remote

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Job Details

Contract
$4,500 - $5,000 a month

Qualifications

Volunteer coordination for social programs
Volunteer management
Volunteer coordination program management
Bachelor's degree
Fundraising event program management
Customer relationship management
Mentoring
Volunteer coordination
Events management
Volunteer recruitment
Donor and alumni database management

Full Job Description

Title: Community Development Project Manager

Reports to: Regional Development Officer (RDO)

Location: Remote / Hybrid (Midwest Region: Illinois, Michigan, Wisconsin)

Status: Independent Contractor

Duration: Project launch date to start as soon as June 1,2026 and runs through December 31, 2026.

Compensation: Monthly Retainer $4,500-$5,000 monthly with average weekly hours 35-40 hours

Applications without a cover letter will not be considered

About HDSA:

The Huntington’s Disease Society of America (HDSA) is the nation’s leading nonprofit organization dedicated to improving the lives of individuals and families affected by Huntington’s disease. Guided by a singular mission and a deep commitment to community, HDSA delivers comprehensive support through education, advocacy, community services, and research, providing help for today and hope for tomorrow. As the field stands on the threshold of potential disease-modifying therapies, HDSA is advancing a bold, forward-looking strategic plan to expand access, strengthen care infrastructure, and prepare the community for this transformative era. With an annual operating budget of approximately $13 million, a diversified revenue portfolio that includes philanthropy, grants, corporate partnerships, and signature events, and stewardship of a $10 million investment and banking portfolio to ensure long-term sustainability, HDSA is poised for growth. We seek mission-driven professionals who value integrity, collaboration, and meaningful impact, and who are inspired to help shape the organization’s financial strength and future during this pivotal time.

Project Overview:

HDSA is seeking a dynamic, relationship-driven Community Development Project Manager to lead the execution of fundraising and community engagement initiatives across assigned markets. This role oversees national signature events — including Team Hope Walks, Run/Ride events, Community Dinners, and Gala Fundraisers — with full accountability for revenue performance, volunteer leadership development, and participant experience. The Manager will build and strengthen peer-to-peer fundraising programs, recruit and mentor volunteer leaders, and develop sustainable event committees that drive both financial growth and community engagement year over year.

In addition to event leadership, the Community Development Project Manager plays a critical role in strengthening and expanding HDSA’s local presence. This includes supporting chapters and affiliate volunteers through onboarding, training, governance alignment, and leadership development; cultivating new markets and partnerships; and serving as a connector between fundraising and mission programming The contract position requires a strategic thinker who can balance revenue generation with community support, ensuring that every initiative advances HDSA’s mission, volunteer infrastructure, and long-term organizational growth.

Scope of Services

Event Planning & Execution

· Serve as the primary point of contact for regional volunteer leaders and committees hosting HDSA fundraising events.

· Manage logistics and planning for Team Hope Walks, Runs/Rides, Galas, and Dinners, ensuring events meet fundraising and attendance goals.

· Coordinate with vendors, venues, sponsors, and volunteers to ensure successful event execution.

· Oversee event registration platforms, donor tracking, budgeting, and reconciliation.

· Maintain consistent branding and mission alignment across all event communications and materials.

Fundraising & Sponsorships

· Support volunteer leaders in identifying and securing local sponsors and donors.

· Develop strategies to increase individual and team fundraising participation.

· Assist in the promotion of events through community outreach, local media engagement, and collaboration with the national marketing team.

Volunteer & Chapter Support

· Serve as a resource to existing HDSA chapters and affiliates, offering guidance and capacity- building support for their events and outreach initiatives.

· Facilitate training and engagement for new and current volunteers involved in events or chapter development.

· Collaborate with the National Team to promote and share best practices across market areas and regions.

New Market Expansion

· Identify and cultivate relationships in untapped or underserved geographic regions with the potential for event growth or new volunteer chapters.

· Develop and nurture partnerships with community stakeholders, healthcare providers, and local businesses.

Support additional regional, chapter, or event-related projects as directed by the RDO

Qualifications:

The successful candidate will meet the following qualifications:

Bachelor’s degree from an accredited four-year college or university required.
3-5 years experience in event management, nonprofit fundraising, or volunteer development.
Proven ability to work independently while managing multiple priorities and deadlines.
Strong communication, organizational, and interpersonal skills.
Experience working with CRM and event registration platforms (e.g., Classy, Blackbaud, or similar) and peer-to-peer fundraising.
Willingness to travel occasionally for onsite event support, trainings and HDSA Education Days.
Strong experience in peer-to-peer fundraising and special event management
Proven success in volunteer development and community organizing
Ability to build sustainable volunteer committees and leadership pipelines
A passion for HDSA’s mission by expanding access to support, education, and resources for families impacted by Huntington’s disease
Contractor to have necessary Equipment (Laptop/Cellphone/Wi-Fi - and Home Office)

Pay: $4,500.00 - $5,000.00 per month

Application Question(s):

This is remote position with occasional travel within the region; however candidates must be based in any of the key market areas within the Midwest Region, Do you currently reside in one of the following cities/states: Illinois, Michigan, Wisconsin?

Work Location: Remote

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