Remote position that requires frequent domestic travel, approximately 25%, mostly in the Washington DC area. Must be based in the United States and ideally in one of the following states: NY, PA, CT, MD, VA, or NC.
Organization Overview
Founded in 1990, the International Myeloma Foundation (IMF) is the first and largest global organization focusing specifically on multiple myeloma. The IMF’s reach extends to more than 525,000 members in 140 countries worldwide. The IMF is dedicated to improving the quality of life of myeloma patients while working toward prevention and a cure through our four founding principles: Research, Education, Support, and Advocacy.
Position Overview
The Manager of Grassroots Advocacy supports and operationalizes the IMF's national grassroots advocacy program, mobilizing patients, caregivers, and supporters in alignment with the organization's federal policy priorities. This is a unique opportunity to be part of a growing, mission-driven organization at the forefront of myeloma policy, where your work directly amplifies the voices of patients and caregivers on Capitol Hill and beyond.
The Manager serves as a key liaison between the IMF's policy team and its national network of patients, caregivers, support group leaders, and advocates, connecting community members with meaningful opportunities to engage in federal advocacy efforts — including Congressional meetings, advocacy campaigns, and Hill Days — while ensuring they are prepared, informed, and effectively engaged in activities that advance IMF's legislative and regulatory strategy.
This is an exciting and dynamic role for a community-driven professional who excels in program execution, relationship building, training, and stakeholder coordination within a policy-driven environment.
Reports to the Director of Public Policy and Advocacy and works closely with internal policy, communications, and program teams to support coordinated advocacy initiatives.
Travel Expectations
This is a remote position. Domestic travel is required for advocacy events, Hill Days, coalition meetings, and select IMF organizational programs. Travel frequency (approx. 25%) will vary based on legislative priorities and event schedules.
This is an exempt position with a salary range of $65,000 - 75,000 per year, DOE.
Key Responsibilities:
Grassroots Program Execution
- Implement grassroots advocacy campaigns aligned with strategic priorities established by Public Policy leadership.
- Execute multi-channel advocacy initiatives, including digital action alerts and coalition-based activities.
- Monitor legislative timelines and coordinate mobilization efforts as directed.
- Develop advocacy resources, communications, and engagement opportunities that help advocates effectively participate in policy and advocacy activities.
- Leverage advocacy software platforms to manage campaigns, track advocate actions, and measure engagement.
Hill Days & Congressional Engagement Support
- Support planning and execution of IMF advocacy days and Congressional engagement events, including virtual and in-person Hill Days.
- Coordinate scheduling logistics, advocate participation, travel coordination, and materials preparation in alignment with agenda items, target offices, and messaging determined by Public Policy leadership.
- Lead advocate training and readiness preparation for Congressional meetings.
- Ensure advocates are briefed, equipped, and aligned with legislative strategy prior to engagement.
- Support post-event follow-up and ongoing engagement with advocates participating in Congressional meetings and advocacy activities.
Advocacy Education & Masterclass Program
- Oversee operational delivery of IMF's Advocacy Masterclass training program, including participant recruitment, scheduling, speaker coordination, program logistics, and participant engagement.
- Maintain and update training materials to ensure advocates are prepared for effective federal engagement.
- Facilitate webinars, training sessions, and preparatory briefings.
- Develop structured engagement pathways to strengthen advocate retention and leadership development.
Advocate Network Management
- Recruit, grow, and steward a national network of patient, caregiver, and supporter advocates.
- Maintain accurate advocate records, demographics, and engagement history while implementing recognition and appreciation strategies that celebrate advocate milestones and sustain long-term network engagement.
- Serve as a primary point of contact for advocates participating in IMF policy and advocacy initiatives.
- Partner with IMF support group leaders and patient education programs to identify, recruit, and engage advocates interested in policy and advocacy activities.
- Identify and prepare advocates for participation in Congressional meetings, coalition efforts, educational programs, and public engagement opportunities.
- Represent the grassroots advocacy program at IMF meetings, patient education programs, support group events, and related organizational events to support advocate recruitment and engagement; domestic travel required as needed.
- Develop and implement recognition and appreciation strategies to celebrate advocate milestones and sustain long-term engagement.
- Maintain accurate advocate records, demographics, and engagement history in CRM or advocacy management platforms.
Coalition & Cross-Functional Collaboration
- Participate in grassroots-focused coalition activities and joint advocacy initiatives.
- Collaborate with Policy and Communications teams to ensure message alignment and campaign amplification.
Reporting & Operational Oversight
- Track and report engagement metrics, campaign performance, advocate participation, and program outcomes.
- Recommend process improvements to enhance program efficiency and impact
Qualifications & Requirements
Education & Experience
- Bachelor's degree in public health, political science, public policy, communications, social work, or a related field required; Master's degree a plus
- 3–5 years of experience in grassroots advocacy, community organizing, patient advocacy, or government relations
- Prior experience in a nonprofit, patient advocacy organization, or health policy environment strongly preferred
- Experience coordinating Hill Days, Congressional engagement, or federal advocacy campaigns preferred
Skills & Competencies
- Strong project management skills with ability to manage multiple priorities simultaneously
- Excellent written and verbal communication skills, including the ability to translate complex policy issues into accessible, compelling messaging for lay audiences
- Demonstrated ability to build and sustain relationships with diverse stakeholders, including patients, caregivers, clinicians, and community leaders
- Proficiency with advocacy platforms, CRM tools, and virtual engagement platforms (Zoom, Teams, etc.)
- Comfort working in a fast-paced, deadline-driven environment with shifting legislative priorities
- Commitment to health equity and culturally responsive engagement practices
Other Requirements
- Ability to travel domestically as needed (estimated 15–25% travel)
- Passion for the IMF's mission and the myeloma patient community
What We Offer
The IMF offers a collaborative, mission-driven work environment, competitive compensation, comprehensive benefits, and the opportunity to make a meaningful difference in the lives of myeloma patients and their families nationwide.
PHYSICAL DEMANDS
The physical demands described here are representative of those an individual must meet to successfully perform the essential functions of this job. Reasonable accommodation may be made to enable individuals to perform the essential functions.
- Ability to travel domestically, most to DC
- Must be able to communicate effectively and exchange accurate information with internal and external audiences in-person and virtually.
- Ability to perform continuous operation of a computer and other office productivity items.
- Must be able to move about efficiently inside an office or event building as well as remain stationary for long periods of time.
- Ability to move items weighing up to 25lbs, bending and reaching throughout the day as needed.
EEO STATEMENT
The International Myeloma Foundation is an Equal Employment Opportunity employer, and all qualified applicants will receive consideration for employment without regard to race, color, religion, sex, age, national origin, protected veteran status, disability status, sexual orientation, gender identity or expression, marital status, genetic information, or any other characteristic protected by law. We are committed to a work environment that supports, inspires, and respects all individuals.
Job Type: Full-time
Pay: $65,000.00 - $75,000.00 per year
Benefits:
- Dental insurance
- Employee assistance program
- Flexible spending account
- Health insurance
- Life insurance
- Paid time off
- Retirement plan
- Vision insurance
Application Question(s):
- This position requires frequent travel to Capital Hill. Are you located in NY, PA, CT, MD, VA or NC?
- This position requires 3 - 5 years of experience in grassroots advocacy. Please briefly describe your experience in this area and how it related to the work we do at the International Myeloma Foundation.
Education:
Experience:
- Advocacy: 3 years (Required)
- Nonprofit: 3 years (Required)
- Community engagement: 3 years (Required)
Willingness to travel:
Work Location: Hybrid remote in Washington, DC
