Top 599 Rare disease patient support Jobs in Remote

Patient Support Manager (Southwest)
Agios Pharmaceuticals —Remote
- $110,029 - $165,044 a year
- Remote
- Microsoft Outlook
- 5 years
- Mid-level
- Health insurance
7d
Patient Advocacy Liaison (West)
Agios Pharmaceuticals —Remote
- $153,541 - $230,312 a year
- Microsoft Word
- Clean driving record
- Computer literacy
- Health insurance
Patient Access Liaison (PAL) – National
Viridian Therapeutics, Inc. —Remote
- $190,000 - $210,000 a year
- Full-time
- Spanish
- Microsoft Excel
- Microsoft Outlook
- AD&D insurance
- Employee stock purchase plan
Quick Apply
3d
Precision Medicine Global Biomarker Lead , Rare Disease
Amgen —Remote
- $166,523.50 - $225,296.50 a year
- Remote
- Medicine
- 3 years
- Bachelor's degree
- Disability insurance
- Health insurance
Dir, Patient Advocacy (Heme)
Servier —Remote
- $191,000 - $230,000 a year
- Full-time
- Remote
- Bachelor's degree
- Travel
- Senior level
- Disability insurance
- Health insurance
Rare Disease Account Manager
Cycle Pharmaceuticals —Boston, MA
- $130,000 - $150,000 a year
- Full-time
- Remote
- Clean driving record
- Microsoft Outlook
- Mid-level
- 401(k)
- Life insurance
Rare Disease Business Manager, PI (Seattle, WA)
Takeda Pharmaceutical —Washington, DC
- $66.11 - $90.91 an hour
- Weekends as needed
- Remote
- Bachelor of Science
- Driver's License
- Travel
- Paid holidays
- Disability insurance
Rare Disease Specialist - Northeast
TerSera Therapeutics LLC —Boston, MA
- $180,000 - $210,000 a year
- Remote
- Hospital
- 5 years
- Bachelor of Science
Associate Director, Patient Engagement GDNF
Asklepios BioPharmaceutical —Remote
- Full-time
- 8 years
- Bachelor's degree
- Travel
Rare Disease Business Manager - GI Rare (SBS) - Seattle
Takeda Pharmaceutical —Washington, DC
- $66.11 - $90.91 an hour
- Full-time
- Remote
- Clean driving record
- Hospital
- Bachelor of Science
- Paid holidays
- Disability insurance
Sr Therapeutic Specialist - Rare Disease - Fresno Territory
Gilead Sciences —Remote
- $133,195 - $172,370 a year
- Full-time
- 6 years
- Bachelor of Science
- Bachelor's degree
- Health insurance
- Dental insurance
Associate Director/Director, Patient Marketing
Agios Pharmaceuticals —Remote
- $153,541 - $275,324 a year
- Remote
- 3 years
- Bachelor's degree
- Travel
- Health insurance
Cash Posting Specialist - Healthcare (Full-time)
TwelveStone Health Partners Inc —Murfreesboro, TN
- Full-time
- Remote
- Basic math
- Research
- High school diploma or GED
Quick Apply
11d
HEOR/RWE Therapeutic Area Lead – Rare Disease
SimulStat —Remote
- Contract
- Medicine
- 8 years
- Doctor of Philosophy
3d
Senior Clinical Research Associate - CNS/Rare Disease - Midwest - Remote
Worldwide Clinical Trials —Research Triangle Park, NC
- Full-time
- Remote
- Nursing
- 5 years
- English
Oncology Account Manager - South Texas
Immunocore —Remote
- $160,000 - $214,000 a year
- Contract
- 7 years
- Hospital
- Bachelor of Science
- Health insurance
- Dental insurance
9d
Oncology Account Manager - South Florida
Immunocore —Remote
- $160,000 - $214,000 a year
- 7 years
- Hospital
- Bachelor of Science
- Health insurance
- Dental insurance
Oncology Account Manager - Mid-America (KS, MO, AR)
Immunocore —Remote
- $160,000 - $214,000 a year
- Full-time
- 7 years
- Hospital
- Bachelor of Science
- Health insurance
- Dental insurance
7d
Global Medical Affairs Asset Lead (GMAL) Rare Disease
Amgen —Remote
- $217,673.10 - $294,498.90 a year
- Remote
- Presentation skills
- Bachelor's degree
- Continuous improvement
- Disability insurance
- Health insurance
Rare Disease Specialist- Mountain West
Soleno Therapeutics Inc —Remote
- Full-time
- Remote
- Nursing
- 5 years
- Mid-level
Quick Apply

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Patient Support Manager (Southwest)

Agios Pharmaceuticals -
Remote

Apply Now

Job Details

$110,029 - $165,044 a year
7 days ago

Benefits

Health insurance

Qualifications

Customer communication
Microsoft Outlook
Medicare
Spreadsheets
Medicaid health insurance
Salesforce Cloud
Continuous improvement
Pharmaceutical company experience
Sales management systems proficiency
Medicaid
CRM system proficiency
Cross-functional collaboration
Cross-functional communication

Full Job Description

Patient Support Manager (Southwest)

Who we are:

At Agios, we are fueled by connections to transform rare diseases. We foster an inclusive, collaborative culture – one that sparks bold thinking and strengthens our connections with each other and with the rare disease communities we serve. We embrace diverse backgrounds with respect, active listening, and a commitment to inclusion – because our differences shape how we hire, collaborate, and innovate. Our team’s proven track record of executional excellence, combined with our depth of expertise and dedication, enables us to develop innovative medicines that reflect the priorities of rare disease communities. Our commitment is more than scientific – it’s deeply personal, grounded in the meaningful connections we have built. To learn more, visit www.agios.com and follow Agios on LinkedIn and X.

The impact you will make:

Agios Pharmaceuticals is searching for a dynamic Patient Support Manager to join our growing Market Access team. We want someone who cares about this important work, and who’s driven to connect to our mission of helping these patient communities. The Patient Support Manager will be responsible for providing exceptional service to patients and caregivers by offering reimbursement support, ongoing adherence support, and connecting them to relevant resources—all while building long-lasting, trusted relationships throughout their treatment journey.

What you will do:

Contribute to the success of a best-in-class patient services program to support Agios’ Commercial Vision Mission
Maintain long-term relationships with patients, caregivers, families, and HCPs to proactively identify and address new and ongoing barriers to access an ultra-rare drug
Ensure close cross-functional collaboration with Agios field-based and home-office teams to ensure a One Agios, unified approach to support patient access and overall brand strategy
Deliver an exceptional patient experience by assessing needs, developing action plans, and proactively addressing potential access barriers to support treatment initiation and ensure continuity of care.
Help patients make connections with other patients and serve as the “face of Agios” at patient events and ambassador programs
Effectively shares reimbursement and other knowledge with customers and internal team members through collaboration and consultation for complex patient case studies
Maintains comprehensive understanding of the access process, navigation of health care systems, insurance plans, payer trends, and internal/external patient and financial assistance programs
Apply program business rules and work instructions to deliver a uniform, consistent and sustainable service experience for patients
Maintain confidentiality of patient health information and act in compliance with all laws, regulations and Agios policies.
Demonstrates and maintains a high level of business acumen, understands Agios' business model, and recognizes the role of the patient support manager in commercializing the business and driving initiatives to achieve company goals
Consistently leverages CRM reporting tools and data analytics to make strategic decisions about their territory and prioritize patient and customer needs
Proficient in the use of Customer Relationship Management tool

What you bring:

Bachelor’s degree is strongly preferred.
Minimum of five (5) years of experience directly related to patient service or market access (e.g., case management) in the healthcare or pharmaceutical/biotech industry.
Experience in private payer, Medicare Part D and Medicaid structure, systems, and reimbursement processes
Experience and proficiency in working with a Customer Relationship Management System, such as Salesforce.com
Continuous improvement, problem solving and managing multiple priorities
Ability to proficiently use Microsoft Excel, Outlook, and Word
Ability to work closely and collaboratively with cross-functional departments andto interact with various internal and external stakeholders
Possess excellent oral and written communication skills
Travel up to 10-15%

Preferred Qualifications

Rare, ultra-rare, or genetic disease experience
Located in the Southwest (PST or Central time zone)
Bilingual – fluent in Mandarin

Concerned that you don’t check off every box in the requirements listed above? Please apply anyway! At Agios, we value each other’s differences and recognize that teams thrive when everyone brings their unique experiences to the table. We are dedicated to building an inclusive, diverse, equitable, and accessible environment where all employees can bring their whole selves to work. If you’re excited about this role but your previous experience doesn’t align perfectly with the job description, we still encourage you to apply. You may be just the right candidate for this role or another opening!

Work Location:

Location Agnostic: Work location for this role is based on employee's individual preference. This role has the ability to be either remote in the US or hybrid in our Cambridge Headquarters. Hybrid schedules vary but are generally less than 3 days per week onsite and hybrid employees are expected to live within commutable distance to our Cambridge Headquarters. Remote employees work entirely from home except for attending Company sponsored events/ meetings. For employees who choose to work remotely, travel may be required for certain company events commensurate to the above job description.

What we will give you:

Deliberate Development. Your professional growth as one of our top priorities.
Flexibility.We’re all about individual needs. We embrace different perspectives, work styles, health and wellness approaches, care of families and productivity. When you’re at your best, we’re at our best.
Premium benefits package. We invest in the health, wellbeing, and security of our people with a premium benefits package that is well-rounded and flexible to help meet the varied personal and professional needs of every member of our team. For more detail on the benefits we offer at Agios, visit the Inside Agios section of our website.
Competitive and equitable performance-based compensation. This includes base salary and both short- and long-term incentives that are connected to our business strategy and vary based on individual and company performance.
- The current base salary range for this position is expected to be between $110,029 and $165,044 annualized; final salary will be determined based on various factors including, but not limited to, years of relevant experience, job knowledge, skills and proficiency, degree/education, and internal comparators.
Psychological safety. We support an environment of fearlessness. We want you to share your ideas, speak candidly and take data-informed risks to help push the boundaries.
Commitment to diversity. We strive to foster a welcoming workplace where everyone can thrive. We’re continuously looking to improve the inclusivity of our workforce.
Commitment to community. We’re an active participant in the communities that surround us – the communities where we live, and the community of people and their loved ones in need of better treatment options for conditions that are often overlooked.

Interested in learning more about what makes our culture unique? Visit the Inside Agios section of our website.

Apply Now

Refine Your Search

rare disease patient support jobs in remote

Patient Support Manager (Southwest)

Patient Advocacy Liaison (West)

Patient Access Liaison (PAL) – National

Precision Medicine Global Biomarker Lead , Rare Disease

Dir, Patient Advocacy (Heme)

Rare Disease Account Manager

Rare Disease Business Manager, PI (Seattle, WA)

Rare Disease Specialist - Northeast

Associate Director, Patient Engagement GDNF

Rare Disease Business Manager - GI Rare (SBS) - Seattle

Sr Therapeutic Specialist - Rare Disease - Fresno Territory

Associate Director/Director, Patient Marketing

Cash Posting Specialist - Healthcare (Full-time)

HEOR/RWE Therapeutic Area Lead – Rare Disease

Senior Clinical Research Associate - CNS/Rare Disease - Midwest - Remote

Oncology Account Manager - South Texas

Oncology Account Manager - South Florida

Oncology Account Manager - Mid-America (KS, MO, AR)

Global Medical Affairs Asset Lead (GMAL) Rare Disease

Rare Disease Specialist- Mountain West

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